23nd Annual Cystic Fibrosis Foundation Invitational Golf Tournament

Jun 22 2011 in Events and Outings by thestarter

23nd Annual Invitational Golf Tournament to be held at Greate Bay Country Club

Ocean City, NJ – The 23nd Annual Cystic Fibrosis Foundation Invitational Golf Tournament will be held at Greate Bay Country Club in Somers Point, NJ on Wednesday, October 5, 2011. The tournament features a double shot gun start at 7:30am and 1:00pm, modified scramble format and cost $150.00 per golfer and Sponsorships are available.

Cystic Fibrosis is a life threatening genetic disease affecting approximately 30,000 children and adults in the United States. Approximately 10 million Americans are symptom-less carriers of the defective gene. CF substantially impairs respiratory and digestive functions, making simple acts of eating and breathing a challenge. The average life expectancy is 37 years of age – there is no cure.

The CF Foundation leverages its dollars with biotech and pharmaceutical companies to ensure that the discovery phase of identifying new drugs to treat CF is ongoing. There are currently more than 30 drugs and therapies in various stages of clinical trials – any one of these could have a dramatic effect on the life of a CF patient. On June 9, 2011, the CF Foundation and Vertex Pharmaceuticals announced positive results from the Phase 2 study of a combination of two potential new drugs, VX-770 and VX-809, in patients with the Delta F508 mutation (the most common genetic mutation in CF patients). This is an important milestone in our efforts to expand the use of small molecules to attack the root cause of the disease in those with the most common mutation.

Our challenge is to raise the dollars through special events, like our golf outing, to fund this landmark research, and to give the children and young adults with CF the quality of life and the future they deserve.

Detailed information and the official invitations will be mailed in upcoming weeks. To participate in this event or for more information, sponsorship or volunteer opportunities, please contact Myra Corcoran, (609)399-7890 or cfgolf@comcast.net.

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